Well today Kevin was supposed to go back to TCCH for his 2nd treatment in his 2nd round of chemo but this will not be happening. We found out Friday just before they kicked us out that TCCH doesn't do outpatient chemo and we were told everything was set up for us to come back be re-admitted and receive chemo we just had to have Dr. Bonis set up the appointment and tell us what time. Poor Dr. Bonis who is just as frustrated as we are was told today on the phone that TCCH doesn't admit for chemo. We would have to come in through the ER, then be admitted in order to receive the drugs BUT Kevin would have to be more "emergent" and rapidly dying from cancer to be admitted in the ER.It all comes back to an insurance, bureaucracy nightmare.
So Kevin will not be getting anymore chemo with TCCH (unless he is "mostly dead" again) something we have been trying to avoid for more than two weeks. Hopefully the paperwork will all be completed for the Thalidomide drug to come this week. Dr. Bonis is also doing everything he can to help speed up the medical process.
These are the inevitable frustrations that always occur but we have seen so many blessings and miracles thus far that we are sure the next few are right around the corner!