THANK YOU THANK YOU THANK YOU We can't say it enough! Through you and our amazing and hardworking Doctor, Kevin has been APPROVED to receive the drug thalidomide!!!! Such good news and we are thrilled. So many miracles continually, we are so blessed :)
They are monitoring his kidneys which are having a hard time being bombarded with calcium so he may need more dialysis. Tomorrow morning Kevin will have a minor surgery to put the central line back in his jugular. This will make the dialysis and possibly more plasma exchange easier.
We are on stand by to possibly go back to UCSF for more plasma exchange sometime soon-ish. This would likely be a much faster trip and the best thing for him but it is not a sure thing yet. Dale & I (Hillary) will likely be going with him again and are completely prepared and comfortable going back. I will let you know as soon as we know. Dr. Bonis will have to call and get us approved to go back, and there also needs to be a bed available but we know that if it's what he needs it will happen!