Many of you have been wondering what's been going on with me since my last visit to UCSF. Well, the most interesting thing is that just as suddenly and mysteriously as he appeared 2 weeks before my cancer needed to be diagnosed and me to get up to UCSF, Dr. William Bonis, has left his practice and we don't have a clue where he's going or what he's going to do. I just had an appointment yesterday with one of his associates, Dr. James Malone in San Luis Obispo, for my bone marrow biopsy and to assess my starting the maintenance chemo Revlamid, and asked him. He said he didn't know and hadn't talked to him since Dr. Bonis had made the decision. And I believe him. We also talked to Dr. Bonis' office manager, who didn't have a clue either. So, even though technically he's "working" through the end of the month, due to his vacation schedule for the next 3 weeks, he was officially gone last Thursday. So that's why I couldn't get an appointment for my bone marrow biopsy scheduled, yet he didn't want me to start the Revlamid until after the biopsy? Wherever you are Dr. Bonis, I thank you for saving my life and wish you the best in your and your family's life. God speed.
My 3rd bone marrow biopsy went well and was quite interesting. Dr. Malone showed Dale & I the blood and marrow and how he prepared the slides for pathology. It was quite interesting. Then he told me to go ahead and take the Revlamid. We like Dr. Malone, but he's no Dr. Bonis, yet. Dr. Malone's a Stanford trained Dr. who also taught there. I never would have made it to UCSF.
The Revlamid gives me a headache, makes me nauseous, clouds my mind a tad and makes me even slower than I already was, and makes my body ache. I haven't had chemo for 3 months. I just got it OUT of my system for goodness sakes! It'll take my body a couple of days to adjust, but, I think it will be OK soon. 21 days on the drug and 7 off. We'll keep you posted.
It will take a couple of weeks before we get the results back, but we're expecting the best. We'll let you know when we hear something. Thanks for your continuing prayers and good thoughts my way. I really do appreciate it. In fact, I'm very honored.
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Are you sure you are not taking a placebo? Kidding.
ReplyDeleteSorry it is so rough. We will keep you in our thoughts and prayers! This Revlamid will work for you. I know it!
Love, one of your favorite niece's
becky
That is weird about your MD. I googled William Bonis. there is a William E Bonis listed in Eureka California. Do not know if it is the same Dr or not.
ReplyDeleteAnyways, It is good to see you doing so well Kevin. troy is doing great and in fact the whole family is going with him to Philmont in a couple weeks!
Jeff